The financial burden of sickle cell disease among parents of children with sickle cell disease in Lagos, Nigeria.
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Date
2020-10
Authors
Adeniran, A.
Oluwole, E.O.
Ojo, O.Y.
Journal Title
Journal ISSN
Volume Title
Publisher
Int J Sci Rep
Abstract
Background: Sickle cell disease is a genetic condition that affects millions of people globally. In view of this, the
study aims at determining the financial burden of sickle cell disease among caregivers of children with sickle cell
disease in Nigeria.
Methods: It was a descriptive cross sectional study and systematic sampling method was used in selecting 162
caregivers amongst the patients in the Lagos State University Teaching Hospital. Semi-structured questionnaires were
used to collect data and analysed using SPSS version 22 software and Microsoft Excel 2007. Results were presented
in frequency tables, chi-square to test association between categorical variables and the statistical significance level
was set at p<0.05.
Results: The mean age of the caregivers was 34.3 years with an increase in frequency of hospitalization 39% amongst
respondents and a cost of hospital bill was over thirty thousand naira (US$76.82).
The reason given mostly by 77% of the respondents for non-usage of health insurance was that the enrolment’s
premium was high and 53% of the caregivers took loan to treat their wards. Catastrophic healthcare expenditure was
found among a quarter 21% of the respondents due to non-usage of health insurance. There was a statistical
significance association between level of education and Catastrophic healthcare expenditure at p value <0.05.
Conclusions: Due to high level of financial burden on caregivers and family members, it will be an important step for
the government to strengthen the health insurance scheme, intensify campaigns and subsidize costs of healthcare for
these patients
Description
Scholarly article
Keywords
Sickle cell disease , Caregivers , Financial burden , Insurance scheme , Nigeria , Research Subject Categories::MEDICINE::Social medicine
Citation
Adeniran A, Oluwole EO, Ojo OY. The financial burden of sickle cell disease among parents of children with sickle cell disease in Lagos, Nigeria. Int J Sci Rep 2020;6(10):396-404. DOI: http://dx.doi.org/10.18203/issn.2454-2156. Int. J. Sci. Rep. 20204031